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Fachgesellschaften - Arbeitsgruppen

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✿ GPOH - Gesellschaft für Pädiatrische Onkologie und Hämatologie (Link)

✽ Arbeitsgemeinschaften ➔ Langzeitbeobachtung (Link)

✽ Expertengremien:
    ➥ Fertilität nach Chemo- und Strahlentherapie ... (FeCt) (Link), (Link - Charité Berlin)
    ➥ Forschungsausschuss Langzeitfolgen (Link)
    ➥ Spätfolgen - Late Effects Surveillance System, LESS (Link) (www.nachsorge-ist-vorsorge.de)

✽ HIT - Behandlungsnetzwerk für Kinder mit Hirntumoren (Link)

✽ APRO - Arbeitsgemeinschaft für Pädiatrische Radioonkologie (Link)

✽ PSAPOH - Psychosoziale Arbeitsgemeinschaft der GPOH (Link a) (Link b)

✿ DGHO - Deutsche Gesellschaft für Hämatologie und medizinische Onkologie (Link)

➥ Arbeitskreis AYA Netzwerk (Link)
➥ Arbeitskreis Fatigue (Link)

✽ Stiftung - Junge Erwachsene mit Krebs (Link)

Leitlinien

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✱ Welche Spätfolgen könnten mich betreffen?
Übersetzung der LangzeitNachsorge Leitline (LTFU Guideline) der Children's Oncology Group - 2018 (Link)

✿ AWMF Leitlinien ➔ Allgemeine Suchfunktion (Link)

✽ Leitlinien der GPOH (Link)

✎☰ 2019 Psychosoziale Versorgung in der Pädiatrischen Onkologie und Hämatologie (pdf Link)
✎☰ 2020 Beeinträchtigung Gonadenfunktion nach Krebs im Kindesalter (pdf Link)
✎☰ 2014 Endokrinologische Nachsorge nach onkologischen Erkrankungen im Kindes- und Jugendalter (pdf Link)
✎☰ 2021 Langzeit - Nachsorge von krebskranken Kindern, Jugendlichen und jungen Erwachsenen – Vermeiden, Erkennen und Behandeln von Spätfolgen  (pdf Link)

✽ Leitlinien anderer Fachgesellschaften

✎☰ 2017 Fertilitätserhaltung bei onkologischen Therapien (pdf Link)

✿ weitere Leitlinien (Guidelines) - english

✽ Children's Oncology Group (Link)
✎☰ 2018 Long-Term Follow-Up (LTFU) Guidelines for Survivors of Childhood, ... Cancers (Link) (pdf Link)

✽ Endocrine Society - Clinical Practice Guidelines (Link)
✎☰ 2018 Hypothalamic-Pituitary and Growth Disorders in Survivors of Childhood Cancer (Link) (Full Text Link)

✽ Healthcare Improvement Scotland | SIGN - Guidelines (Link)
✎☰ 2013 Long term follow up of survivors of childhood cancer (Link) (pdf Link)

✽ PanCare - Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer (Link) ✎☰ 2021 European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer (Link) (pdf Link) (in dieser Leitlinie werden bestimmte Medikamentengruppen ebenso wie betimmte organbezogene Spätfolgen nicht berücksichtigt)

✽ IGHG: International Guideline Harmonisation Group for Late Effects of Childhood Cancer (Link)
✎☰ 2013 A Worldwide Collaboration to Harmonize Guidelines for the Long-Term Follow-Up of Childhood and Young Adult Cancer Survivors (Link) (pdf Link)
✎☰ Bone mineral density surveillance for childhood, adolescent, and young adult cancer survivors (Link) (PubMed Link)
✎☰ Recommendations for breast cancer surveillance for female survivors of childhood, adolescent, and young adult cancer given chest radiation (Link) (PubMed Link) (pdf Link)
✎☰ Recommendations for cardiomyopathy surveillance for survivors of childhood cancer (Link) (pubMed Link) (pdf Link)
✎☰ Surveillance for subsequent neoplasms of the CNS for childhood, adolescent, and young adult cancer survivors (Link) (pubMed Link)
✎☰ Coronary artery disease surveillance among childhood, adolescent and young adult cancer survivors (Link) (PubMed Link)
✎☰ Recommendations for the surveillance of education and employment outcomes in survivors of childhood, adolescent, and young adult cancer (Link) (PubMed Link) (pdf Link)
✎☰ Recommendations for the surveillance of cancer-related fatigue in childhood, adolescent, and young adult cancer survivors (Link) (pubMed Link) (pdf Link)
✎☰ Communication and ethical considerations for fertility preservation for for patients with childhood, adolescent, and young adult cancer (Link) (pubMed Link)
✎☰ Fertility preservation for female patients with childhood, adolescent, and young adult cancer (Link) (pubMed Link)
✎☰ Fertility preservation for male patients with childhood, adolescent, and young adult cancer (Link) (pubMed Link)
✎☰ Recommendations for gonadotoxicity surveillance in male childhood, adolescent, and young adult cancer survivors (Link) (PubMed Link)
✎☰ Late hepatic toxicity surveillance for survivors of childhood, adolescent and young adult cancer (Link) (pubMed Link)
✎☰ Hypothalamic-Pituitary and Other Endocrine Surveillance Among Childhood Cancer Survivors (Link) (PubMed Link)
✎☰ Recommendations for the surveillance of mental health problems in childhood, adolescent, and young adult cancer survivors (Link) (pubMed Link)
✎☰ Counseling and surveillance of obstetrical risks for female childhood, adolescent, and young adult cancer survivors (Link) (PubMed Link) (pdf Link)
✎☰ Recommendations for ototoxicity surveillance for childhood, adolescent, and young adult cancer survivors (Link) (PubMed Link)
✎☰ Recommendations for Premature Ovarian Insufficiency Surveillance for Female Survivors of Childhood, Adolescent, and Young Adult Cancer (Link) (PubMed Link) (pdf Link)
✎☰ Balancing the benefits and harms of thyroid cancer surveillance in survivors of Childhood, adolescent and young adult cancer (Link) (PubMed Link)

Studien

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✿ Kinderkrebsinfo - Fachinformationen - Studienportal (Link)

➥ Kinderkrebsinfo - Studienliteratur ➔ Kinderkrebsregister (Link)

➥ Kinderkrebsinfo - Studienliteratur ➔ Spätfolgen nach Chemo- und Radiotherapie (Link)

✿ Deutsches Register Klinischer Studien (Link)

✿ GPOH - Gesellschaft für Pädiatrische Onkologie und Hämatologie

➥ Klinische Studien (Link)

✿ Kinderkrebsregister (Link)

➥ Projekte - Studien (Link)
✎☰ 2018 Folgeneoplasien nach Krebs im Kindesalter in Deutschland zwischen 1980 und 2014 (pdf Link)

✿ Projekt VIVE - Erfassung und Auswertung von Spätfolgen (Link)

✎☰ 2019 Health status, Health-Related Quality of Life and Socio-economic Outcome in Childhood Brain Tumor Survivors (Link)

✿ RISK - Register Spätfolgen nach Strahlentherapie im Kindes- und Jugendalter (Link)

✿ CVSS - Kardiovaskuläre Spätfolgen bei Langzeitüberlebenden nach Krebs im Kindesalter (Link)

➥ Pressemitteilung - Universitätsmedizin Mainz (Link)
✎☰ 2019 Cardiovascular risk factors are important determinants of platelet-dependent thrombin generation in adult survivors of childhood cancer (Link)
✎☰ 2018 Burden of cardiovascular risk factors and cardiovascular disease in childhood cancer survivors (Link)

➥ PSYNA (Psychosocial long‐term effects, health behavior, and prevention among long term survivors of cancer in childhood and adolescence) (Link)
✎☰ 2019 Prevalence of mental distress among adult survivors of childhood cancer in Germany-Compared to the general population. (Link) (pdf Link)

✿ ISIBELa - Intrinsische Strahlenempfindlichkeit:
Identifikation biologischer und epidemiologischer Langzeitfolgen (Link)

Internationale Studien - english

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✿ PanCare - Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer (Link)

✎☰ 2021 European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer (Link) (pdf Link)

✿ PanCareLife (Link)

✎☰ 2019 Genetic Determinants of Ototoxicity During and After Childhood Cancer Treatment ... (Link)  (pdf Link)
✎☰ 2018 PanCareLIFE: The scientific basis for a European project to improve long-term care ... (Link)
✎☰ 2018 Genetic variation in gonadal impairment in female survivors of childhood cancer ... (Link) (pdf Link)
✎☰ 2018 Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer ... (Link) (pdf Link)

✿ PanCareSurFup (Link)

✎☰ 2019 Risk of subsequent primary leukaemias ... survivors of childhood cancer diagnosed from 1940 to 2008 in Europe ... (Link)
✎☰ 2018 The PanCareSurFup consortium: research and guidelines to improve lives ... (Link)
✎☰ 2018 The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer ... (Link) (pdf Link)
✎☰ 2018 Risk of Soft-Tissue Sarcoma Among ... Survivors of Childhood Cancer in Europe (Link) (pdf Link)
✎☰ 2018 Risk of Subsequent Bone Cancers Among ... Survivors of Childhood and Adolescent Cancer in Europe (Link) (pdf Link)
✎☰ 2018 The 'Survivorship Passport' for childhood cancer survivors. (Link) (pdf Link)

✿ Childhood cancer survivor Study (CCSS) (Link)

✎☰ 2020 Late mortality and chronic health conditions in long-term survivors of early-adolescent and young adult cancers (Link)
✎☰ 2020 Life Expectancy of Adult Survivors of Childhood Cancer Over 3 Decades (Link)
✎☰ 2020 Longitudinal pain and pain interference in long-term survivors of childhood cancer (Link)
✎☰ 2019 Sleep, emotional distress, and physical health in survivors of childhood cancer ... (Link) (pdf Link)
✎☰ 2019 Alcohol consumption behaviors and neurocognitive dysfunction and emotional distress in adult survivors of childhood cancer ... (Link)  (pdf Link)
✎☰ 2010 Ocular late effects in childhood and adolescent cancer survivors... (Link) (pdf Link)
✎☰ 2006 Incidence and Clinical Relevance of Abnormal Complete Blood Counts in Long-Term Survivors of Childhood Cancer (Link) (pdf Link)

✿ St. Jude LIFE (SJLIFE) (Link)

✎☰ 2020 Shortened Leukocyte Telomere Length Associates with an Increased Prevalence of Chronic Health Conditions among Survivors of Childhood Cancer... (Link)
✎☰ 2019 The changing burden of long-term health ... in survivors of childhood acute lymphoblastic leukaemia (Link)
✎☰ 2019 Prediction of Low and Very Low Bone Mineral Density Among Adult Survivors of Childhood Cancer (Link)  (pdf Link)
✎☰ 2018 Posttraumatic stress-related psychological functioning in adult survivors of childhood cancer (Link) (pdf Link)
✎☰ 2013 Dexamethasone exposure and memory function in adult survivors of childhood acute lymphoblastic leukemia - (Link) (pdf Link)

✿ Chochrane Library (Link)

✎☰ 2020 Severe fatigue after treatment for childhood cancer (Link)
✎☰ 2019 Hepatic late adverse effects after antineoplastic treatment for childhood cancer. (Link)
✎☰ 2019 Early and late adverse renal effects after potentially nephrotoxic treatment for childhood cancer. (Link)

(Fach-)Literatur

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✿ CCLG - Children's Cancer and Leukemia Group ➔ Contact Magazine - english (Link)

➥ Issue on Late Effects - Summer 2019 (pdf Link)

✿ Fachliteratur (Link)

Fachbücher

Nachsorge und Spätfolgen - International - english

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✿ PanCare - Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer (Link)

✿ Childhood Cancer International - CCI (Link)

✿ CCLG - Children's Cancer and Leukemia Group - living-beyond-cancer (Link)

✽ Factsheets (Link)

✽ Health of survivors in adulthood (pdf Link)

✿ National Cancer Institute - Late effects of treatment for childhood cancer (Link)

✿ Children's Oncology Group (Link)

➥ Long-Term Follow-Up (LTFU) Guidelines (Link)

✿ Cancer.Net - Late effects of Childhood cancer (Link)

➥ Managing late effects of childhood cancer (Link)

➥ Life after cancer treatment for young adults (Link)

➥ Long-term side effects of cancer treatment (Link)

✿ St.Jude Children's Research Hospital - Long Term and Late Effects (Link)

✿ Cancer SurvivorLink - Your Link to Care After Cancer (Link)

✿ Alex’s Lemonade Stand Foundation "Childhood Cancer Survivors - A Practical Guide to Your Future" (Link)