alt=Logo der Selbsthilfegruppe Kranich

Selbsthilfegruppe für Erwachsene nach einer Krebserkrankung im Kindes-/Jugendalter in Norddeutschland

✿ AWMF Leitlinien ➔ Allgemeine Suchfunktion (Link)

✽ Leitlinien der GPOH (Link)
➥ Nachsorge von Krebskranken Kindern, Jugendlichen und jungen Erwachsenen - ... Spätfolgen - 2013 (pdf Link)
➥ Endokrinologische Nachsorge nach onkologischen Erkrankungen im Kindes- und Jugendalter - 2014 (pdf Link)
➥ Beeinträchtigung Gonadenfunktion nach Krebs im Kindesalter - 2015 (pdf Link)

✽ Leitlinien anderer Fachgesellschaften
➥ Fertilitätserhaltung bei onkologischen Therapien - 2017 (pdf Link)

✿ weitere Leitlinien (Guidelines) - english

✽ Long-Term Follow-Up (LTFU) Guidelines for Survivors of Childhood, ... Cancers (Link) (pdf Link) - 2018

✽ Endocrine Society - Guideline - Hypothalamic-Pituitary and Growth Disorders ... (Link) - 2018

✽ Healthcare Improvement Scotland | SIGN
- Long term follow up of survivors of childhood cancer (Link)
(pdf Link) - 2013

✽ International Late Effects of Childhood Cancer Guideline Harmonization Group:
➥ Recommendations for ototoxicity surveillance for childhood, adolescent, and young adult cancer survivors - 2019 (Link)
➥ Balancing the benefits and harms of thyroid cancer surveillance in survivors of Childhood, adolescent and young adult cancer - 2018 (Link)
➥ Recommendations for gonadotoxicity surveillance in male childhood, adolescent, and young adult cancer survivors - 2017 (Link)
➥ Recommendations for Premature Ovarian Insufficiency Surveillance for Female Survivors of Childhood, Adolescent, and Young Adult Cancer - 2016 (Link) (pdf Link)
➥ Recommendations for cardiomyopathy surveillance for survivors of childhood cancer - 2015 (Link) (pdf Link)
➥ Recommendations for breast cancer surveillance for female survivors of childhood, adolescent, and young adult cancer given chest radiation - 2013 (Link) (pdf Link)
✿ Kinderkrebsinfo - Fachinformationen - Studienportal (Link)

✿ Deutsches Register Klinischer Studien (Link)

✿ GPOH - Gesellschaft für Pädiatrische Onkologie und Hämatologie
➥ Klinische Studien (Link)

✿ Kinderkrebsregister (Link)
➥ Projekte - Studien (Link)

✿ Projekt VIVE - Erfassung und Auswertung von Spätfolgen (Link nicht mehr verfügbar)
➥ Veröffentlichungen - Abstract - english (2019 Link)

✿ RISK - Register Spätfolgen nach Strahlentherapie im Kindes- und Jugendalter (Link)
➥ Artikel in der "WIR" (pdf Link - nicht mehr verfügbar)

✿ CVSS - Kardiovaskuläre Spätfolgen bei Langzeitüberlebenden nach Krebs im Kindesalter (Link)
➥ Pressemitteilung - Universitätsmedizin Mainz (Link)
➥ Veröffentlichungen - Abstract - english (2018 Link) (2018 Link) (2019 Link)

➥ PSYNA (Psychosocial long‐term effects, health behavior, and prevention among long term survivors of cancer in childhood and adolescence) (Link) Veröffentlichung - Abstract - english (2018 Link)

✿ ISIBELa - Intrinsische Strahlenempfindlichkeit:
Identifikation biologischer und epidemiologischer Langzeitfolgen (Link)

✿ FeCt - Fertilität nach Chemo- und Strahlentherapie im Kindes- und Jugendalter (Link)
➥ Artikel in der "WIR" (pdf Link - nicht mehr verfügbar)

✿ PanCareLife - english (Link)
➥ PanCareLIFE: The scientific basis for a European project to improve long-term care ... (Link)
➥ Genetic variation in gonadal impairment in female survivors of childhood cancer ... (Link) (pdf Link)
➥ Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer ... (Link) (pdf Link)

✿ PanCareSurFup - english (Link)
➥ Genetic Determinants of Ototoxicity During and After Childhood Cancer Treatment (Link) (pdf Link)
➥ The PanCareSurFup consortium: research and guidelines to improve lives ... (Link)
➥ The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer ... (Link) (pdf Link)
➥ Risk of Soft-Tissue Sarcoma Among ... Survivors of Childhood Cancer in Europe (Link) (pdf Link)
➥ Risk of Subsequent Bone Cancers Among ... Survivors of Childhood and Adolescent Cancer in Europe (Link) (pdf Link)
➥ Risk of subsequent primary leukaemias ... survivors of childhood cancer diagnosed from 1940 to 2008 in Europe ... (Link)
✿ Österreichische Kinderkrebshilfe - Zeitschrift "SONNE" (Link)

✿ Kinderkrebsstiftung - Zeitschrift "WIR" (Link nicht mehr verfügbar)

✿ CCLG - Children's Cancer and Leukemia Group ➔ Contact Magazine - english (Link)

✿ Kinderkrebsinfo - Studienliteratur ➔ Kinderkrebsregister (Link)

✿ Kinderkrebsinfo - Studienliteratur ➔ Spätfolgen nach Chemo- und Radiotherapie (Link)

✿ NCBI - PubMed ➔ Suchmaschine für medizinische Fachliteratur - english (Link)

✽ 2019
➥ Late Effects of Treatment for Childhood Cancer (PDQ®): Health Professional Version (Link)
➥ Long-Term Endocrine and Metabolic Consequences of Cancer Treatment ... (Link)
➥ Long-Term Risk of Skin Cancer Among Childhood Cancer Survivors ... (Link)
➥ Sleep, emotional distress, and physical health in survivors of childhood cancer ... (Link)
➥ Growth hormone deficiency and neurocognitive function in adult survivors ... (Link)
➥ Risk of benign meningioma after childhood cancer in the DCOG-LATER cohort ... (Link)
➥ Health status, Health-Related Quality of Life and Socio-economic Outcome in Childhood Brain Tumor Survivors ... (Link)

✽ 2018
➥ Surveillance for Late Effects in Childhood Cancer Survivors (Link) (pdf Link)
➥ Improving Childhood Cancer Survivor Care Through Web-Based Platforms (Link) (full Text Link)
➥ Second Malignancies Following Childhood Cancer Treatment in Germany From 1980 to 2014 (Link) (pdf Link)
➥ The influence of genetic variation on late toxicities in childhood cancer survivors ... (Link) (pdf Link)
➥ Models of Care for Survivors of Childhood Cancer From Across the Globe ... (Link) (pdf Link)
➥ Multidisciplinary Late Effects Clinics for Childhood Cancer Survivors in Germany ... (Link) (pdf Link)
➥ Prevalence of mental distress among adult survivors of childhood cancer ... (Link) (pdf Link)
➥ Cardio-toxicity in childhood cancer survivors "Cure is not enough" (Link) (pdf Link)

✽ 2017
➥ Late effects and Long-Term Follow-Up after Cancer in Childhood - Review (Link) (pdf Link)
➥ Prevalence of cardiovascular late sequelae in long-term survivors of childhood cancer ... (Link)
➥ New Neoplasm During GH Replacement in Adults With Pituitary Deficiency ... (Link)