alt=Logo der Selbsthilfegruppe Kranich

Selbsthilfegruppe für Erwachsene nach einer Krebserkrankung im Kindes-/Jugendalter

Fachgesellschaften - Arbeitsgruppen

✿ AWMF Leitlinien ➔ Allgemeine Suchfunktion (Link)

✽ Leitlinien der GPOH (Link)
✎☰ 2019 Psychosoziale Versorgung in der Pädiatrischen Onkologie und Hämatologie (pdf Link)
✎☰ 2020 Beeinträchtigung Gonadenfunktion nach Krebs im Kindesalter (pdf Link)
✎☰ 2014 Endokrinologische Nachsorge nach onkologischen Erkrankungen im Kindes- und Jugendalter (pdf Link)
✎☰ 2021 Langzeit - Nachsorge von krebskranken Kindern, Jugendlichen und jungen Erwachsenen – Vermeiden, Erkennen und Behandeln von Spätfolgen  (pdf Link)

✽ Leitlinien anderer Fachgesellschaften
✎☰ 2017 Fertilitätserhaltung bei onkologischen Therapien (pdf Link)

✿ weitere Leitlinien (Guidelines) - english

✽ Children's Oncology Group (Link)
✎☰ 2018 Long-Term Follow-Up (LTFU) Guidelines for Survivors of Childhood, ... Cancers (Link) (pdf Link)

✽ Endocrine Society - Clinical Practice Guidelines (Link)
✎☰ 2018 Hypothalamic-Pituitary and Growth Disorders in Survivors of Childhood Cancer (Link) (Full Text Link)

✽ Healthcare Improvement Scotland | SIGN - Guidelines (Link)
✎☰ 2013 Long term follow up of survivors of childhood cancer (Link) (pdf Link)

✽ IGHG: International Guideline Harmonisation Group for Late Effects of Childhood Cancer (Link)
✎☰ 2013 A Worldwide Collaboration to Harmonize Guidelines for the Long-Term Follow-Up of Childhood and Young Adult Cancer Survivors (Link) (pdf Link)
✎☰ 2019 Recommendations for ototoxicity surveillance for childhood, adolescent, and young adult cancer survivors (Link)
✎☰ 2018 Balancing the benefits and harms of thyroid cancer surveillance in survivors of Childhood, adolescent and young adult cancer (Link)
✎☰ 2017 Recommendations for gonadotoxicity surveillance in male childhood, adolescent, and young adult cancer survivors (Link)
✎☰ 2016 Recommendations for Premature Ovarian Insufficiency Surveillance for Female Survivors of Childhood, Adolescent, and Young Adult Cancer (Link) (pdf Link)
✎☰ 2015 Recommendations for cardiomyopathy surveillance for survivors of childhood cancer (Link) (pdf Link)
✎☰ 2013 Recommendations for breast cancer surveillance for female survivors of childhood, adolescent, and young adult cancer given chest radiation (Link) (pdf Link)
✿ Kinderkrebsinfo - Fachinformationen - Studienportal (Link)
➥ Kinderkrebsinfo - Studienliteratur ➔ Kinderkrebsregister (Link)
➥ Kinderkrebsinfo - Studienliteratur ➔ Spätfolgen nach Chemo- und Radiotherapie (Link)

✿ Deutsches Register Klinischer Studien (Link)

✿ GPOH - Gesellschaft für Pädiatrische Onkologie und Hämatologie
➥ Klinische Studien (Link)

✿ Kinderkrebsregister (Link)
➥ Projekte - Studien (Link)
✎☰ 2018 Folgeneoplasien nach Krebs im Kindesalter in Deutschland zwischen 1980 und 2014 (pdf Link)

✿ Projekt VIVE - Erfassung und Auswertung von Spätfolgen (Link)
✎☰ 2019 Health status, Health-Related Quality of Life and Socio-economic Outcome in Childhood Brain Tumor Survivors (Link)

✿ RISK - Register Spätfolgen nach Strahlentherapie im Kindes- und Jugendalter (Link)

✿ CVSS - Kardiovaskuläre Spätfolgen bei Langzeitüberlebenden nach Krebs im Kindesalter (Link)
➥ Pressemitteilung - Universitätsmedizin Mainz (Link)
✎☰ 2019 Cardiovascular risk factors are important determinants of platelet-dependent thrombin generation in adult survivors of childhood cancer (Link)
✎☰ 2018 Burden of cardiovascular risk factors and cardiovascular disease in childhood cancer survivors (Link)

➥ PSYNA (Psychosocial long‐term effects, health behavior, and prevention among long term survivors of cancer in childhood and adolescence) (Link)
✎☰ 2019 Prevalence of mental distress among adult survivors of childhood cancer in Germany-Compared to the general population. (Link) (pdf Link)

✿ ISIBELa - Intrinsische Strahlenempfindlichkeit:
Identifikation biologischer und epidemiologischer Langzeitfolgen (Link)

✿ Pan Care - Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer (Link)

✿ PanCareLife (Link)
✎☰ 2019 Genetic Determinants of Ototoxicity During and After Childhood Cancer Treatment ... (Link)  (pdf Link)
✎☰ 2018 PanCareLIFE: The scientific basis for a European project to improve long-term care ... (Link)
✎☰ 2018 Genetic variation in gonadal impairment in female survivors of childhood cancer ... (Link) (pdf Link)
✎☰ 2018 Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer ... (Link) (pdf Link)

✿ PanCareSurFup (Link)
✎☰ 2019 Risk of subsequent primary leukaemias ... survivors of childhood cancer diagnosed from 1940 to 2008 in Europe ... (Link)
✎☰ 2018 The PanCareSurFup consortium: research and guidelines to improve lives ... (Link)
✎☰ 2018 The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer ... (Link) (pdf Link)
✎☰ 2018 Risk of Soft-Tissue Sarcoma Among ... Survivors of Childhood Cancer in Europe (Link) (pdf Link)
✎☰ 2018 Risk of Subsequent Bone Cancers Among ... Survivors of Childhood and Adolescent Cancer in Europe (Link) (pdf Link)
✎☰ 2018 The 'Survivorship Passport' for childhood cancer survivors. (Link) (pdf Link)

✿ Childhood cancer survivor Study (CCSS) (Link)
✎☰ 2020 Late mortality and chronic health conditions in long-term survivors of early-adolescent and young adult cancers (Link)
✎☰ 2020 Life Expectancy of Adult Survivors of Childhood Cancer Over 3 Decades (Link)
✎☰ 2020 Longitudinal pain and pain interference in long-term survivors of childhood cancer (Link)
✎☰ 2019 Sleep, emotional distress, and physical health in survivors of childhood cancer ... (Link) (pdf Link)
✎☰ 2019 Alcohol consumption behaviors and neurocognitive dysfunction and emotional distress in adult survivors of childhood cancer ... (Link)  (pdf Link)
✎☰ 2010 Ocular late effects in childhood and adolescent cancer survivors... (Link) (pdf Link)
✎☰ 2006 Incidence and Clinical Relevance of Abnormal Complete Blood Counts in Long-Term Survivors of Childhood Cancer (Link) (pdf Link)

✿ St. Jude LIFE (SJLIFE) (Link)
✎☰ 2020 Shortened Leukocyte Telomere Length Associates with an Increased Prevalence of Chronic Health Conditions among Survivors of Childhood Cancer... (Link)
✎☰ 2019 The changing burden of long-term health ... in survivors of childhood acute lymphoblastic leukaemia (Link)
✎☰ 2019 Prediction of Low and Very Low Bone Mineral Density Among Adult Survivors of Childhood Cancer (Link)  (pdf Link)
✎☰ 2018 Posttraumatic stress-related psychological functioning in adult survivors of childhood cancer (Link) (pdf Link)
✎☰ 2013 Dexamethasone exposure and memory function in adult survivors of childhood acute lymphoblastic leukemia - (Link) (pdf Link)

✿ Chochrane Library (Link)
✎☰ 2020 Severe fatigue after treatment for childhood cancer (Link)
✎☰ 2019 Hepatic late adverse effects after antineoplastic treatment for childhood cancer. (Link)
✎☰ 2019 Early and late adverse renal effects after potentially nephrotoxic treatment for childhood cancer. (Link)

  • J. D. Beck, C. Bokemeyer, T. Langer
    Late Effects and Cancer Survivor Care in the Young
    Springer Verlag 2021

  • C. Müller, T. Langer
    Geheilt aber nicht gesund: Spätfolgen nach Krebserkrankungen im Kindes- und Jugendalter
    Shaker Verlag 2018

  • C. L. Schwartz, W.L. Hobbie
    Survivors of Childhood and Adolescent Cancer:
    A Multidisciplinary Approach (Pediatric Oncology)
    Springer Verlag 2016

  • C. Müller
    Ein Meilenstein in der Medizin
    Die Geschichte des Behandlungserfolgs bei Leukämie und Lymphom im Kindesalter
    Lehmanns Media Berlin 2014

  • B. B. Nenning, M. Christmann, P. Gutjahr
    Leukämiekranke Kinder - erwachsen geworden
    Hans Marsaille Verlag GmbH München 2007

  • N. Keene, W. Hobbie, K. Ruccione
    Childhood Cancer Survivors -
    A Practival Guide to Your Future
    Childhood Cancer Guides O'Reilly Media 2007